DataSpace is an EU funded project exploring what is driving the establishment of cross-border health-data infrastructures, which types of infrastructures are being established, with which implications for whom.


Healthcare is increasingly datafied and a wide range of actors – patients, clinicians, administrators, policymakers and industry – want to be able to exchange and access health data across national boundaries. Competing initiatives for fostering cross-border data integration proliferate, and the EU provides major investments, e.g. through the European Health Data Space. These massive investments will influence healthcare, administration and research, but we do not yet know how.

DataSpace explores what is driving the establishment of cross-border health-data infrastructures, which types of infrastructures are being established, with which implications for whom. Furthermore, we wish to explore how these new data infrastructures emerge in tandem with wider social changes where data have become constitutive for the lives we can live. With DataSpace we therefore explore and conceptualize how people experience themselves and the world around them with and through data.

We take the term ‘space’, empirically present in the EHDS initiative, and reinvigorate it theoretically to establish a vocabulary fitted for understanding data-intensive health environments. We suggest seeing data spaces as having both formative and experiential dimensions and explore how they interact. Concerning the formative dimensions, data spaces are enacted through promises, work, and users. Four experiential dimensions relate to what is experienced as right (legally and morally), true (epistemologically), present (phenomenologically) and valuable (economically, emotionally, and socially). This theoretical approach moves beyond problematic and archaic distinctions between the virtual and the real and provides a new understanding of how patients, clinicians, researchers, administrators, and industry shape healthcare with and through data.



Health in data space. Formative and Experiential Dimensions of Cross-Border Health Data Sharing
Hoeyer, K, S Green, A Martani, A Middleton, and C Pinel, Big Data and Society 11(1): 1-14. (2024)

The European health data space: Too big to succeed?
Luca Marelli, Marthe Stevens, Tamar Sharon, Ine Van Hoyweghen, Martin Boeckhout, Ilaria Colussi, Alexander Degelsegger-márquez, Seliem El-sayed, Klaus Høyer, Robin Van Kessel, Dorota Krekora Zając, Mihaela Matei, Sara Roda, Barbara Prainsack, Irene Schlünder, Mahsa Shabani, Tom Southerington. Health Policy. 2023



Hoeyer, K (2022) The gap between policy claims and likely gains. Invited participation in the roundtable Towards the European Health Data Space, KU Leuven, Leuven, Belgium, October 25.

Hoeyer, K (2023) The European Health Data Space: How are we to understand its impact on clinical relations? Keynote on the 4th SymPCa Conference. Sommerøy, Tromsø, Norway, September 21.

Hoeyer, K (2023) Making and Experiencing the European Health Data Space, Keynote at Revaluing European Research Infrastructures, University of Vienna, Austria, May 26



Public seminar June 12, 2024: Call for Abstracts for Public seminar: The ends of data: theories, methods, and interventions in critical data and AI studies | The Event (

Public seminar March 11, 2024: The European Health Data Space: How will it affect research? 

Article January 12, 2024: Her er fire gode råd til arbejdet med ny psykiatriaftale.
Sarah Wadmann, Anne Høyen Munk, Klaus Høyer, Lene Høgh, Ida Hageman, Lone Bjørklund, Mette Falkenberg Krantz (2024) Syv eksperter. Altinget, 12 Januar 2024.


Funded by

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Name Title Phone E-mail
El-Mahdi, Miriam PhD Fellow +4535324853 E-mail
Green, Sara Associate Professor +4535334632 E-mail
Høyer, Klaus Lindgaard Professor +4535327996 E-mail
Middleton, Alexandra Suzanne Assistant Professor   E-mail
Neubert, Jonas Jörg PhD Fellow +4535333734 E-mail
Sørensen, Janne Senior Consultant +4535327288 E-mail

Other staff

Name Email
Andrea Martani